The Heart of a Child Fund

Events & Activities

  Coming Soon

 

 

 

BENS TRIBUTE CD

HERE IS A SAMPLE OF ONE OF THE SONGS ON THIS COMING ALBUM

 

 

WE WILL KEEP YOU INFORMED OF OUR EXACT LAUNCH DATE

AND WHEN YOU CAN BUY YOUR COPY LIVE OF THIS WEBSITE 

 

UPDATE

A KIND VOLUNTEER IN ENGLAND HAS COME FORWARD TO HOST A SPONSORED MOTORBIKE RIDE IN OCTOBER. HE IS CURRENTLY INVESTIGATING PERMITS 

DATES AND TIMES OF THIS EVENT TO BE CONFIRMED 

  

 

PLEASE NOTE

NO MORE EVENTS ARE BEEN PLANNED BY US AT THIS PRESENT TIME

WHILE WE FOCUS ON THE LUANCH OF OUR CD

AND WORK ON OUR PETITION

HOWEVER WE ARE OPEN TO OTHERS OFFERING THERE SUPPORT BY ORGANISING EVENTS AND WE HAVE BEEN INFORMED BY A REALIABLE SOURCE THAT WE CAN HAVE MORE THEN 2 PERMITS A YEAR AND OTHERS CAN APPLY FOR PERMITS WITH US AS THERE INTENDED  BENEFICIARY      

 

ALL PROCCEDS RAISED FROM THESE EVENTS WILL GO TOWARDS PRODUCING BENS CD  AND THE SALE OF BENS CD  WILL GO DIRECTLY TO ALL OUR WORK IN THE AREA OF

HYPO-PLASTIC LEFT HEART SYNDROME,

RESEARCH & TRAINING,

BEREAVED PARENTS & CHILDREN

 

A FAMILY WHO HAVE A YOUNG BOY CALLED BEN ALSO,

AND WHO HAS HLHS,

HAS BEEN CHOSEN TO FUND A RESPITE HOLIDAY TO NEXT YEAR.

MORE DETAILS ON THIS TO FOLLOW. 



 


 

Join as a Member Now

Current News

We are delighted to announce the launch of our HLHS Support Group.

This space was created to allow Parents, family and friends of HLHS Kids join and be part of a group of courageous people that share a common experience.

Parents and Family who have also sadly lost a Child to HLHS can join also and share tribute pictures and stories.

This Site also allows you to chat directly with our Team and with each other.

We will be hosting regular on line coffee mornings where our staff will offer support where they can.

Join us Here

http://hypoplastichearts.ning.com/


This Month also saw the creation of our New Awareness Campaign Video 

The Video is a Wonderful Way of Helping Us Promote the New Chat Site and highlight the affects of HLHS.

Please feel free to use the link to share it where you feel its relevant for you.

Its Viewable Here

http://www.youtube.com/watch?v=Ba0n_u73BRk


We are currently gathering information for our first HLHS Booklet

and after obtaining a vast amount of information on HLHS we are now building our Report .

To date we have collected 1063 Signatures for our petition.


A big thank you to all who have signed and supported us.

In TRUTH our LIGHT shines,

Together we are Making a Difference!



Up Coming Events

We Are Currently Structuring some Fundraising Events


Friends of The Fund Now on Line

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