The Heart of a Child Fund - Sign Our Petition

Sign Our Petition

Help us Create Awareness of Hypo-plastic Left Heart Syndrome in Ireland and get better heart scanning for all pregnant women.

Have a Heart and Join us Now in Creating Public awareness of HLHS.

1-200 Children each year are born with this Congenital Heart condition. And these numbers are on the rise. This condition is often fatal in Ireland as lack of awareness and in adequate detection are the biggest challenges children with HLHS Face. Thats before they even start treatment.

My son Ben was born in 2003, he lived for 4 hours. We had no pre-warning of his condition. Nor where we provided with any extra scanning, even though there is a history of MAJOR Heart defects in my family. Had I received scanning Ben maybe alive today.

Ben was born with only half a heart working basically, had it been diagnosed in the womb he could have gone on to have surgery and treatment that could have given him a chance at life.

Research into this condition is needed as its a very uncertain world for families and children who have it. There is no known cause of it and as of yet no known cure. However surgery is available to help prolong life and give each child a chance.

In Ben's memory we have established a Charity called The Heart of a Child Fund, part of our aims is to create public awareness of HPLS and also to to lobby for better scanning in pregnancy for women. We aim to also to provide written literature to be place in all doctors surgery's and hospitals throughout Ireland.

Please sign our petition and help create public awareness of this condition. Your signatures will be sent to the Health Minister in Ireland, helping to ensure children's hearts are heard.

Click the Link Below to Sign our Petition

It only takes a couple of minutes to make a difference!

SIGN OUR PETITION

Our Petition is Now Available to Print, so you can invite your friends, family and Work Collegues to get involved.

Here is a Link so you can Print your Copy Today!

PRINT OUR PETITION

It Helps Save our Costs, So Thank You!

Please Return all Petitions to Our Head Office at:

The Heart of a Child Fund

14 The Links

Eleven Ballyboes

Greencastle

Co.Donegal

Ireland

Please do send this to your friends and family.

Join as a Member Now

Current News

We are delighted to announce the launch of our HLHS Support Group.

This space was created to allow Parents, family and friends of HLHS Kids join and be part of a group of courageous people that share a common experience.

Parents and Family who have also sadly lost a Child to HLHS can join also and share tribute pictures and stories.

This Site also allows you to chat directly with our Team and with each other.

We will be hosting regular on line coffee mornings where our staff will offer support where they can.

Join us Here

http://hypoplastichearts.ning.com/

This Month also saw the creation of our New Awareness Campaign Video

The Video is a Wonderful Way of Helping Us Promote the New Chat Site and highlight the affects of HLHS.

Please feel free to use the link to share it where you feel its relevant for you.

Its Viewable Here

http://www.youtube.com/watch?v=Ba0n_u73BRk

We are currently gathering information for our first HLHS Booklet

and after obtaining a vast amount of information on HLHS we are now building our Report .

To date we have collected 1063 Signatures for our petition.

A big thank you to all who have signed and supported us.

In TRUTH our LIGHT shines,

Together we are Making a Difference!

Up Coming Events

We Are Currently Structuring some Fundraising Events

Friends of The Fund Now on Line

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