The Heart of a Child Fund - Who We Support

Other Related Groups We Support

CHD-NI who also Raise Awareness of Congenital Heart Defects

Congenital Heart Defects N-Ireland ( CHD-NI) is established in March 2009 and is a voluntary support organisation for anyone affected by,

or living with, a congenital heart defect.

CHD-NI is aiming raise awareness of Congenital Heart defects, provide information and support .

It is run by parents and adults who have experience with Congenital Heart defects themselves.

Contact them here

CHD-NI

Little Hearts Matter

Little Hearts Matter offers support and information, and raises awareness of those affected when a child has only half a heart, due to conditions such as Hypoplastic Left Heart Syndrome (HLHS), Pulmonary Atresia, Tricuspid Atresia or Double Inlet Ventricle.

Please Log on to

Little Hearts Matter

Angel Ayla

Ayla was born on 28th June 2008.

She was born with a Bilateral Cleft Palate & Lip, but most sadly, she was born with a Congenital Heart Defect.

A year ago she sadly passed away.

Her Parents have set up this site for her

Please show your support for them on there website

Angel Ayla - Spreads Her Wings

Heart Beat Northern Ireland

Heartbeat is a Parent Support Group for families of children who have heart disease. Heart disease is now the most common problem in Northern Ireland. In excess of 200 babies are born here each year with a heart disorder. One third of these children are sufficiently ill to require investigation and/or surgery.

Find out More at

Heart Beat

Heart Children Ireland

Heart Children are a Voluntary Organisation with an over all aim to provide support for those

effected by CHD in Ireland.

The Heart of a Child Fund has to date sent this Group a Donation of 1000 Euro

Find out More at

Heart Children Ireland

Join as a Member Now

Current News

We are delighted to announce the launch of our HLHS Support Group.

This space was created to allow Parents, family and friends of HLHS Kids join and be part of a group of courageous people that share a common experience.

Parents and Family who have also sadly lost a Child to HLHS can join also and share tribute pictures and stories.

This Site also allows you to chat directly with our Team and with each other.

We will be hosting regular on line coffee mornings where our staff will offer support where they can.

Join us Here

http://hypoplastichearts.ning.com/

This Month also saw the creation of our New Awareness Campaign Video

The Video is a Wonderful Way of Helping Us Promote the New Chat Site and highlight the affects of HLHS.

Please feel free to use the link to share it where you feel its relevant for you.

Its Viewable Here

http://www.youtube.com/watch?v=Ba0n_u73BRk

We are currently gathering information for our first HLHS Booklet

and after obtaining a vast amount of information on HLHS we are now building our Report .

To date we have collected 1063 Signatures for our petition.

A big thank you to all who have signed and supported us.

In TRUTH our LIGHT shines,

Together we are Making a Difference!

Up Coming Events

We Are Currently Structuring some Fundraising Events

Friends of The Fund Now on Line

Share Now on Your Facebook Profile

Share on Facebook